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Malan Syndrome Foundation

Malan Syndrome Foundation

South Amboy, new jersey, united states

About

The malan syndrome first diagnosed in 2010 is a rare genetic disorder characterized by macrocephaly hydrocephalus cognitive impairment seizures vision and hearing impairment heart abnormalities and scoliosis. there is limited understanding of what causes the syndrome and how it progresses. currently, there are no disease-modifying treatments. the mission of the malan syndrome foundation is to improve the lives of those affected by malan syndrome in the global community through outreach and research.

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Company Details

HQ Location

South Amboy, new jersey, united states

Industry

non-profit organizations

Employees

3

Founded

2018

South Amboy

Jersey St, South Amboy, new jersey, united states

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